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Paying for Support in Pennsylvania: County Funds, Waivers, and Where to Ask

GuideParents, Caregivers, AdultsAll agesTransition & Adult Services
At a glanceFamilies often pay out of pocket for therapies, camps, respite, and equipment without knowing that Pennsylvania counties offer Family Support Services (a small family-directed budget), base-funded services (county-arranged services), Medicaid waivers, and Medical Assistance for children with disabilities. What each covers, who qualifies, and the one phone call that opens every door.

The money most families never hear about

Many families pay out of pocket for therapies, camps, respite, and equipment — or go without — never knowing that public funding exists for exactly those things. In Pennsylvania, much of it runs through your county, and the first step is a phone call most people don’t know to make.

Two county programs: Family Support Services and base-funded services

Both come through your county’s MH/IDD (Mental Health / Intellectual and Developmental Disabilities) office, both are for people registered with the county who are not on a waiver, and both draw on the state money the county receives for intellectual disability and autism services — but they work differently, and they pay for different things.

Family Support Services (FSS) — in many counties called Family Driven Support Services (FDSS) or Family Resource Services — is a small, fixed amount of money per family per year that the family directs. You choose from a menu of purchases: respite care (in-home or a summer/respite camp), a family aide or sitting service, recreation and leisure programs, family education and training, adaptive equipment and adaptable products, medical supplies, home or vehicle modifications, and therapies not covered elsewhere. Amounts and menus vary by county and year, funds are limited, and requests are usually reviewed by a county committee — ask early in the fiscal year (July).

Base-funded services are services the county arranges and pays a contracted provider for, when a person is eligible but waiver funding isn’t available: supports coordination, in-home and community supports, behavioral support, respite delivered by an agency, transportation, and similar. You don’t receive a budget; the county authorizes the service and the provider bills the county.

In practice: FSS/FDSS is the family’s own small budget for the things that make daily life workable; base funding is the county buying formal services on your behalf. A family can be using one, the other, or both while on a waiver waiting list.

How to get either: contact your county MH/IDD office and ask to register for intellectual disability or autism services. Registration requires documentation of the diagnosis (for autism, a diagnostic evaluation; for ID, testing showing eligibility). Once registered, a Supports Coordinator or the county office can tell you what Family Support funds and base-funded services are available and how to request them. Every Pennsylvania county office is listed in the ND Collab directory.

Medicaid waivers — the larger, longer-term funding

Waivers fund ongoing services: behavioral support, in-home support, job coaching, day programs, residential support, and respite.

Pennsylvania’s main waivers for autism and intellectual disability are:

  • Person/Family Directed Support (P/FDS) waiver — a capped annual amount per person; the most common starting point.
  • Community Living waiver — a higher cap than P/FDS, for people who need more support to live in the community.
  • Consolidated waiver — no annual cap; for the highest levels of need, including residential support.
  • Adult Autism Waiver — for adults with autism age 21 and older; the only one with a minimum age.

Waitlists are real and can be years long, so registering with the county — the same step as above — should happen well before the funding is needed. The county’s Supports Coordination unit manages the waiting list and the application.

A common misconception about age. Families are sometimes told that a child has to be 18 or 21 before they can apply for a waiver. That is not the case for the P/FDS, Community Living, or Consolidated waivers: the state’s own eligibility criteria say “individuals of any age with an intellectual disability or autism.” The Adult Autism Waiver is the only one with a minimum age (21). If you hear otherwise, ask to see the eligibility criteria — and register with the county now, because the waiting list, not age, is the real delay.

Medical Assistance for children with disabilities

In Pennsylvania a child with a qualifying disability can receive Medical Assistance (Medicaid) regardless of the parents’ income — often called the “loophole” or PH-95 category. MA covers many therapies, behavioral health services (including BSC/behavior support), and equipment that private insurance limits or denies. Apply through the county assistance office or COMPASS, with the child’s diagnosis documentation.

Other places to look

  • Early Intervention (birth to 3 through the county; 3 to 5 through the Intermediate Unit) — free evaluations and services.
  • School-based services under an IEP or 504 plan — evaluations, therapies, and supports at no cost to the family.
  • ACAP (Adult Community Autism Program) in participating counties.
  • Disability-specific grants and foundations — small one-time grants for equipment, camp, or iPads; ask your Supports Coordinator which ones families in your county use.
  • ABLE accounts — tax-advantaged savings that don’t affect benefits.

The one thing to do this week

Call your county MH/IDD office and say: “I’d like to register my child (or myself) for intellectual disability / autism services and ask about Family Support Services funding.” That call opens every door above.

Programs, amounts, and eligibility change and vary by county. This guide describes Pennsylvania; other states have their own county or regional systems — ask your state’s developmental disabilities agency. Not legal or financial advice.

Find your county office

Choose your county to see the office to call, with its address, phone, and website.

Key terms

Family Support Services (FSS) / Family Driven Support Services (FDSS)
A small fixed annual budget the family directs toward a county menu: respite, camp, recreation, family aide, education, adaptive equipment, therapies.
Base-funded services
Services the county arranges and pays a provider for when no waiver is available (supports coordination, in-home supports, behavioral support, agency respite).
MH/IDD office
Where you register.
P/FDS, Community Living, Consolidated, Adult Autism
Pennsylvania’s main waivers.
Medical Assistance (PH-95)
Medicaid for a child with a disability regardless of parent income.
Supports Coordinator
Your county-assigned guide to funding and services.

Our perspective

Support should not depend on a family’s bank balance or on knowing the right acronym. Public funding exists because neurodivergent people are entitled to lives with real support — using it is not charity, it is access.